#fibropain – @spookysalem13 on Tumblr

I woke up sick today. Sinus issues, chest pressure and a bit of an upset stomach. The part that's hurting the most though is the fibro pain that's come along with it 🫠.

As usual when I'm sick, as I lay in bed and spend all my time on my phone trying to distract myself from the physical pain I'm in, expect more content today 🖤.

It does suck to have to miss more work. I can't really afford to be missing any work right now. But considering I can't really feel my legs from the pain my fibro is causing and I'm contagious with my snotty sinuses, I don't really have a choice.

If you can, tips are always appreciated. They help me to keep making content as I try to expand upon what I do online to build a beautiful spooky 👻 community. Hopefully one day I can work from home. That way my health conditions don't continue to affect my job.

Wishing you all the best, I hope you have a happy Tuesday. Stay positive ✨️ today has plenty of potential.

spookysalem13

GIF by iamcello

Today was the most insanely busiest day I've had at my job since I've returned to my old position back in September of 2023.

I worked entirely alone today. I was running around in circles all day.

Lines almost nearing out the door, the ding dong door bell 🔔 never stopped going off for even a moment.

Running outside, inside, from the front of the store to the back of the store. Dealing with unhappy customers after the next. And having to hold my pee because I couldn't catch five seconds to go to the bathroom.

I was immensely stressed and overwhelmed. My anxiety was through the roof.

Dealing with a fibro and autoimmune disease flare all at the same time was causing me to want to collapse.

I needed the hours, I needed the money. I kept pushing and pushing 🫸 until night crew finally showed up. Only a half an hour late 😑.

I walked all the way to the opposite side of the parking lot to get to my ride who had been waiting for me for 45 minutes. I felt so bad.

But I made it through the day. Though after lifting all those propane tanks today during a fibro flare, I can't currently lift my arms.

I'm in a tremendous amount of pain. My joints hurt, my muscles hurt. But my brain 🧠 won't shut off so I can sleep. I'm so over stimulated from the day. The stress is eating me alive.

Today has been a dumpster fire 🔥 kind of day.

spookysalem13

My health has lead me to needing to call out from work again. I feel so guilty.

This time its my fibromyaglia and rheumatoid arthritis that's causing weakness and pain throughout my whole body. Severe swelling and agony in my joints.

My brain is so entirely fogged I can't even verbally articulate a sentence properly. I don't know why, please let me know if you're also chronically ill, especially if you deal with a lot of high inflammation levels. And if you also struggle to articulate speech as your inflammation levels rise. Because for me, it seems to be my first signal something isn't right.

So today is an under the heated blanket, in bed with my kitty kind of day.

The fatigue is so bad I anticipate sleeping a great deal. Other than sleep my intentions are to spend time in my social media communities today. It's always comforting to me.

GIF by ask-dr-knockout

spookysalem13

I've been sick with covid-19 for about a week or so now. Today is the first day I've woken up and I finally feel better than I did the day before.

My autoimmune diseases have been having a rough time fighting off the virus 🦠, it's sent me into a major flare, which has been more pain.

But my fever has finally broke. I can hear again, though my ears still ache.

I think I'm pretty much past the covid-19, I'll probably be fully through it in a day or two. But what I'm left with is an autoimmune and fibromyalgia flare.

This has really sucked, but I'm grateful 🙏 that my body was able to get through this.

I'm hoping by tomorrow I will be able to return to work. Masked 😷 up, and I will just have to deal with my flares. Because ya dude needs money 😅.

It is pretty awful 😖 that in this world, the chronically ill, like myself, still have to work when we're this sick, just to keep going.

Our government nor our employeers have our back.

I am very lucky 🍀 to have a manager whose very understanding of my illnesses and to work on a team where everyone is caring and considerate of each other.

It makes working during my flares slightly more tolerable.

One more day at home, then I head back tomorrow.

spookysalem13 reblogged

I want my fucking body back. I want my fucking life back.

spookysalem13

I'm chronically ill. I'm disabled physically and mentally. I live a rough life from day to day. People always tell me how strong I am.

This may be with the best of intentions but in all honesty I'm not strong, I'm very weak from being broken down every single second of my life from my chronic illnesses.

I don't get to live my life, I'm surviving not thriving.

spookysalem13 reblogged

I haven't been getting better about listening to my body about resting when I need it so I think I'll try getting worse at pretending I'm not in pain, maybe that will work

spookysalem13

I shall try too. I will let you know how it goes 😉

#gonna try tricking myself into being functional #chronic pain #chronic fatigue #spoonie #chronically ill #chronic illness #autoimmune disease #rheumatoid arthritis #osteoarthritis #ehlers danlos syndrome #hypermobile ehlers danlos #hypermobility #fibromyalgia #fibropain

spookysalem13

Chronic excruciating pain can fully kiss 💋 my a$$! I've been living like this my whole life. I'm tired 😫 I can't take this anymore! I'm livid, I'm angry, I'm PI$$ED OFF! Why don't doctors want to help you? 😒 They've been letting me suffer & I'm sick & tired of it!

I'm only 24 years old I shouldn't be stuck in bed! This is a load of BS! When my doctor hears from me today I make zero promises to be nice 😑.

I'm going to be as loud as I need to be until someone hears me screaming to death in tears from the inside 😭. I need HELP! I don't want this to be my life... why don't they get that?

Did doctors go to school to become heartless & dumb is that lesson number 1? How to make your patient suffer the most?

UGHHHHH! IM SO MAD! I'm snapping at the people I care about because I can't take living in my own meat suit anymore. How screwed is that?! I haven't slept for more than 3 hours a night in 8 months! Because pain insomnia is real! I can't even rest anymore because I can't get comfortable.

I'm so tired! I hurt everywhere all the time... I can't do this anymore. It's so much stress on me I'm burning 🔥 down from the inside.

spookysalem13

Oh, how I wish I could be that person who is consistent with their skincare routine. Skincare brings me so much joy, it makes me feel beautiful, it's peaceful.

But at the same time, I'm chronically ill. I have so many health conditions that I battle every single day, and sometimes I simply don't have the spoons needed to stand there, in chronic pain, fatigued and falling over, to apply skincare to my face.

I do the best I can because it truly is something that I enjoy with all my heart. But I try my best not to feel too guilty when I only do it once a day or have to skip a day or two. Because these days with how much I'm battling, I simply need rest. I'm not doing very well, and the last thing I should feel guilty about is if I chemically exfoliated that night or not.

Tonight, I was actually able to get into the bathroom and do my full skincare routine. Though the pain I feel afterward is great. So many spoons just fell out the door. As someone on a night schedule for my job, I just cost so many spoons. Luckily, no work tonight. So I'll try to get plenty of rest. I'm not only chronically ill, but I have a really bad cold. As an immune compromised person, it's truly beating me up.

Remember that doing the best you can, even when your best looks different from day to day, is all you can ask. You're a warrior.