#autoimmune diseases – @spookysalem13 on Tumblr

I've been sick with covid-19 for about a week or so now. Today is the first day I've woken up and I finally feel better than I did the day before.

My autoimmune diseases have been having a rough time fighting off the virus 🦠, it's sent me into a major flare, which has been more pain.

But my fever has finally broke. I can hear again, though my ears still ache.

I think I'm pretty much past the covid-19, I'll probably be fully through it in a day or two. But what I'm left with is an autoimmune and fibromyalgia flare.

This has really sucked, but I'm grateful 🙏 that my body was able to get through this.

I'm hoping by tomorrow I will be able to return to work. Masked 😷 up, and I will just have to deal with my flares. Because ya dude needs money 😅.

It is pretty awful 😖 that in this world, the chronically ill, like myself, still have to work when we're this sick, just to keep going.

Our government nor our employeers have our back.

I am very lucky 🍀 to have a manager whose very understanding of my illnesses and to work on a team where everyone is caring and considerate of each other.

It makes working during my flares slightly more tolerable.

One more day at home, then I head back tomorrow.

spookysalem13 reblogged

youngchronicpain

You do not deserve the pain that you are in. I am sorry that you are hurting. I am hurting too. I wish things were different. But I am glad that we are not alone in this.

spookysalem13

Thank you for this 💜

spookysalem13

I'm chronically ill. I'm disabled physically and mentally. I live a rough life from day to day. People always tell me how strong I am.

This may be with the best of intentions but in all honesty I'm not strong, I'm very weak from being broken down every single second of my life from my chronic illnesses.

I don't get to live my life, I'm surviving not thriving.

spookysalem13

Just got home from the ER, went in because I was having difficulty breathing. My asthma inhaler wasn't working. I was coughing up a storm. I started sweating 😓 feeling very hot 🥵.

Dad took me to the hospital and we found out I have covid-19 🙃.

My Mamma, brother & his wife just got back from an Alaskan cruise. They came back feeling sick. So I told my Mamma that she went on a boat and brought back plague 😅.

I'm trying not to panic about it. But the doctor did put me on Paxlovid because I'm at high risk being immune compromised with my autoimmune diseases. She wants to try to prevent me from ending up in the hospital she said.

I swear germs love me too much, I'm starting to become a germaphobe. Being immune compromised I catch absolutely everything and it's getting extremely frustrating! 😕

spookysalem13

Felt that! As a chronically ill person this is highly relatable. And I also have a dark sense of humor as a spooky 👻 bish 🤪 so bring it on I'm officially haunted lol 😆

spookysalem13

Right now I'm mad, I'm frustrated & I'm hurt. I was told by everyone I saw that Primary Care was where I would be able to get temporary help while I wait to get into the pain clinic. Legally my rheumatologist cannot help me with my pain in the manner in her professional opinion I be treated.

I was seen in the Emergency Room, they were able to help me for a six hour period but legally they aren't allowed to send me home with anything. Primary Care legally has the ability to provide me with the temporary treatment I need during the waiting process so idk I can literally get out of bed without crying!

My rheumatologist was kind enough to send my Primary Care my whole file, to send her the notes from our last recent visit and to give her professional recommendation that I be put on something for my pain.

I was seen in the ER, the doctor there also referred me to my Primary Care for temporary treatment during the wait. The doctor there said she'd be able to help me while I wait. I needed to contact her immediately to be put on proper treatment so I'd no longer have to suffer.

Only an hour before my appointment with my Primary Care I get a call from her office, saying due to personal beliefs and personal discomfort she has she won't be providing me the medical treatment I've been directed to her for by multiple professionals. And that she found my doctors efforts to help me by referring me to her as inappropriate!

So easy to say I got my hopes up my suffering would end today. Only to be called an hour prior to be told that my doctor is denying me the care that she was directed to provide for me.

This may happen a lot with doctors and patients in this country when it comes to pain medication. But here's the honest truth, it isn't legal! It's also unethical, inhumane and incredibly harmful to allow a patient to continue to suffer when you have the ability to provide the care they need legally with all the documentation, recommendations and necessary information needed to provide the care required. There are ZERO laws tying her hands to help me. And it's 100% patient neglect.

This may happen but I won't tolerate it. Sometimes doctors need to be reminded of the laws in the field in which they work. If a doctor is going to refuse care based off of personal beliefs and discomfort than they shouldn't be a doctor in the first place. As a doctor you do not get to pick and choose who walks through your door needing your help and get to decide if you want to treat them or not. That's not how it works. So either do your job or find a new career field because you're obviously an unfit care provider.

I of course filed a complaint with the Washington Medical Commission immediately, because I'm sick and tired of doctors not doing their jobs! What she did was illegal and I am taking necessary action that she be evaluated for what she's done. And necessary actions be taken. Because once again her actions were illegal.