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#aba therapy – @nekobakaz on Tumblr
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Wibbly-Wobbly Ramblings

@nekobakaz / nekobakaz.tumblr.com

Hi!! I'm Corina! Check out my About Page! Autistic, disabled, artist, writer, geek. Asexual. nekomics.ca .banner by vastderp, icon by lilac-vode
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I abused children for a living. It didn’t look like abuse. It didn’t feel like abuse (at least not to me) but it was definitely abuse. I see that now. Back then, I actually thought I was helping those kids. In fact, it was and still is considered ‘therapy.’ And not just any therapy- the most sought-after autism therapy, often the ONLY therapy insurance will cover. To this day it’s lauded as the only “evidence-based treatment” for autism.
You see, I was an ABA therapist. My official title was ‘Behavior Technician’ which in itself is really telling. I was hired off the street with no background in child development, no knowledge of autism or ABA, and no experience working with children, let alone autistic children. I. Literally. Did. Not. Know. What. Autism. Is. And I wouldn’t find out what autism is in the years that I worked there either.
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From the campaign description: 

Adult survivors of ABA have been writing about their experiences for many years. Some non-autistic parents have also written about their experiences of ABA with their autistic children, and they now oppose it as well. Even a few former ABA therapists have come out against it, because they realized what they were doing was cruel and abusive.
Many ABA survivors report post-traumatic stress disorder from enduring years of what they describe as mental, emotional, and physical abuse. They have been repeatedly told who they are is wrong and they need to appear “normal”. With obedience being the desired and preferred behaviour of the autistic person, many people suggest this makes the autistic person less able to say no to someone who might be wanting to do them harm.
People opposed to ABA are often ignored, dismissed, gaslit, and threatened. This has caused considerable frustration and anger from those with lived experience of the treatment who feel their voices and perspectives are not being valued as they try to advocate for a more critical review and reflection on ABA.  As a result, there is a growing radical autistic advocacy community who feel they have nothing left to lose in trying to advance a different conversation on autism.
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This documentary features powerful first-hand accounts of autistic adults who suffered abuse from ABA they received as children. The film also features neurotypical parents of autistic children who oppose ABA, as well as some former therapists who eventually came to regret what they had been part of.
This is a part of autism history that has never been told on film before: how the most revered “treatment” for autism can in fact be experienced as abusive and traumatizing. This hard-hitting film sheds light on a critical part of autism history that has never been told by the mainstream media, the medical community, or shared with the general public.

This documentary is by autistic people. Even if it’s just reblogging and signal boosting, help us tell the truth about ABA and its part in autism history. 

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reblogged
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I wish that every autism researcher and autism-field professional would read this and think very carefully about what is said here, as well as every parent of autistic kids. It’s not about whether ABA/IBI “works”, it’s about ethics, it’s about human rights

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I wish behaviorists understood

That every time you use DTT, and every time you make someone do something that’s arbitrary from their perspective — you reinforce compliance and prompt-responsiveness.

Even if the goals are good. Having good goals and meeting them doesn’t somehow eliminate side effects or render them irrelevant.

I think probably even if the therapy is consensual.

And the effect is cumulative.

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my name is christine and i work with children with autism

i the first time i hurt a child my boss tells me i am good at my job the second time i hurt a child my boss tells me i am good at my job the third time i hurt a child my boss tells me i am good at my job i like my job i am good at my job positive reinforcement ii my boyfriend hates picking me up after work he says its the sterile environment schools shouldn’t look like a hospital, he says i feel exhausted as i reflect on the sterile, clinical building then i  remember that this isn’t a school this is a treatment center iii i’m so sorry but that is not earning your token stand up sit down stand up sit down stand up sit down stand up sit down stand up sit down stand up sit down stand up sit down stand up sit down stand up sit down stand up sit down iv he asks me if i’ll do the horsie song i’m sitting in the shade and he plummets into my lap before i can respond it is a rare treat for him to speak i can’t help but indulge him, so i sing "this is how the ladies ride, up and down, side by side this is how the horsies go, yippity yi, yippity yo!” he laughs and thanks me before bolting back to the playground v i lose count of how many times i hurt children i don’t know if its the hundreth or thousanth or millionth time i hurt a child i’m holding a spray bottle of vinegar he spits it out after the third time sobbing, he tells me that he hates his life and wants to die six years old the kid sitting next to him cannot speak, and instead starts wailing i’m a bad person, i think i hesitate my boss tells me that i am not doing my job i go home and cry the next day i don’t hesitate positive punishment vi my boss calls all the classroom staff in for a meeting she tells us that we need to stop being so affectionate with the children it is unprofessional and inappropriate, she insists she warns us that we will be put on corrective action for any future offenses a week later he asks me if i will sing the horsie song so i sing him the horsie song after our sessions are over, my boss calls me into her office i am put on corrective action but that’s how you do the horsie song, i argue i warned you, she reminds me vii i am told there will be a few positions open for full time i am encouraged to apply i begin filling out the application i think about the pay raise i think about having my own classroom i think about training new staff i think about what we do i turn off the computer before i finish the application i leave the center and never come back viii my new job is much better but the center is still open less than five minutes away from my apartment hundreds of children still spend their days there stand up sit down no longer seeing it doesn’t make it any less of a material reality

stand up…

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reblogged
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reblogged

Hi. In comment you had made on a post Kelli Stapleton you stated "ABA is torture and abuse in medically acceptable forms." I want to ask how you have come to that conclusion. I have worked as an ABA therapist for over three years and have never done anything approaching abuse, much less torture, in fact I am impressed by how useful, successful and overall kind the techniques are. I believe that anything negative from ABA is the fault of the people involved being cruel. The system itself is not.

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Oooh boy.

The system itself is beyond flawed.  It has nothing to do with “good” therapists and “bad” ones.  The very system itself is set up to harm autistic people.

I’m not talk about “oh, the insurance codes it as ABA even though it’s not because that’s the only way the insurance/the government will pay for it”.  I’m talking about actual Applied Behavior Analysis, which has its roots in therapy that lauds aversives, whose founder is Ivar Lovaas, the same man who worked with the Feminine Boys Project, which you can read about here:

He is the one responsible for the behavioral therapy that is so predominant in the autism world today. 

This is a really good blog post (with some great outside links) about ABA and why it’s troublesome.  

And if you had taken a few seconds to scroll through my links, you would have also found this post, which I find is the #1 most relatable and understandable source of information on why I personally hesitate when it comes to ABA:  

That post is almost 2 years old, and it still makes me feel a bit nauseated when I think of the implications of ABA.

And if you are to understand the link above, you need to also read this, which is very difficult to read but necessary.

ABA teaches autistic people a lot of different things.  It can be used as a tool to teach skills.  That’s fine - and I think that’s where we get into some murky waters where y’all are calling something ABA that is not for insurance purposes.  If you’re sitting there and teaching actual skills with no aversives and very little reward/punishment? Then it’s probably not really ABA.  If you are using aversives and rewarding kids (and withholding rewards) for asinine requests that are just not logical, well, then it’s probably ABA and it probably isn’t anything good.  

ABA is training your child like a dog.  It’s literally not any different from obedience training with animals.  And if you fucking wouldn’t do it with a neurotypical typical child, what gives you the BRILLIANT idea that you should do it to an autistic one? 

Right, I know.  Because we’re not really altogether human.  That’s the answer, isn’t it? Because I can never quite y’all to give me a direct answer.  Why do I or my kids need to submit to this crap, but my neurotypical counterparts don’t need to? And I’m about 99.99% sure that it’s because you consider autistic people to be inherently flawed and in need of being fixed.  Not to adapt, but to be fixed.

Here, I think you should also read this:

If you want autistic kids to be indistinguishable from our NT peers, you are HURTING US.

And this, THIS is why ABA is so fucked up in so many ways:

So, stop trying to prove that you’re a good ally and actually BE one.

Stop trying to hurt us.  Stop trying to prove that you’re “one of the good ones”.  Read and learn and don’t come back at me with tone policing arguments and that I wasn’t nice enough or that I was too harsh or “you’re not all like that” (how many times have marginalized people heard THAT ONE?).  

Prove it.  Fucking prove it.  Prove that you’re not like all the rest and get out of the soul sucking business that is ABA.  Find something to actually help autistic people.  Maybe find an anti-bullying campaign to lobby for.  Or start one.  That would help autistic people.  

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ABA teaches kids how NOT to communicate

Therapist: “Where does grandma work?”  Little boy: “Um… she works at the house.” “No. Where does grandma work? Say ‘library’.” “Library.” “Whee! Now you get a starburst.”

This is not how you teach three year olds to communicate in language.  Communicating is not about saying what you think other people want you to say. Communicating is about connecting thoughts to words the best you can and saying them (or typing them, or pick your pleasure).  This is not how you teach a kid “the woman who gives me many cookies works in a big building full of stories, which is awesome” this is how you teach a kid “when people tell me “blah blah blah” I should say “blah blah BLEE blah”.” And this shows how, even “playful nice aversive-free” ABA is about having the kid be right, and not having the kid be a kid who mixes up “house” and “library”, or calls a library a “bookhouse”, or thinks Grandma’s “work” is baking him cookies. Don’t you want to say, “What does she do at the house?” and hear him say “Gives me cookies” and see him light up, and smile with him, or maybe he’ll tell you she stacks the books at the house and you can say “I think she does that at the library.” in a nice way, and also a way that actually teaches him something, because the way you’re doing it he just knows he’s wrong, and he doesn’t know why.  Being a little kid shouldn’t be about wrong and right. If a kid tells you he’s found a portal to fairyland, you aren’t supposed to say “No”, you’re supposed to say “Take me with you”.

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karalianne

What ABA is like: The point of view of a former therapist

I figure it’s high time I ‘fess up about what exactly it was I did for all those years (1999-~2005; after 2003 I was half doing play therapy, and after 2005 I was doing all respite and community access) I was working as an ABA therapist (that’s Applied Behaviour Analysis). So this post is a description of an ABA session. I’ll be talking mostly about Lovaas-style here, but the basics of how a trial is structured are the same whether you’re talking Lovaas, Carbone, Sundberg & Partington, or whatever.

A “trial” is a discrete trial. ABA’s major foundation is the idea of discrete trial teaching (DTT). There are three components to a discrete trial:

  1. Antecedent (SD [Discriminative Stimulus]; basically, the command)
  2. Behaviour (R [Response]; basically, what the student does in response to the command)
  3. Consequence (SR [Reinforcing Stimulus]; basically, praise or toys or food given for a correct response)

I named them Antecedent, Behaviour, Consequence here because when an ABA therapist is keeping track of behaviours (this term always means “unwanted behaviours” and often means “stimming”) they use an A-B-C sheet, and that’s the information they always keep track of (along with a few other things): what happened just before the behaviour, what the specific behaviour was, and what the student got out of the behaviour.

But I digress. I’ll be using the terms SD, R, and SR throughout the examples in this post.

I’m putting it behind a Read More because it could be triggering for some people. Also, it’s really long. But if you were ever curious about just what ABA is actually like, read this.

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chavisory

Can I just say, as someone who never had ABA, that that actually sounds like the most confusing and ineffectual possible method for teaching actual skills?

Totally.

Teaching verbal imitation was horrible. We did all the consonants with all the vowel sounds after them once we figured out that “t” is impossible to do without some kind of vowel sound after it. (Try it. You can’t do it. It’s annoying as fuck and it pissed me off.) “Say ‘may’” “Say ‘mah’” “Say ‘me’” “Say ‘meh’” etc.

Teaching spelling was fantastic. The kid I did that with loved letters so we made a letter board with card stock (laminated) letters Velcroed on and we’d put a word on a row of Velcro and say “Spell ‘cat’” and all they had to do was pull each letter in order and place it below the sample. Meanwhile, fine motor skills was not easy, and gross motor imitation was silly. You try hand-over-handing someone to kick a ball after you kick a ball. :P

Useful things we did as part of this: toilet training and eating messy food with a spoon or fork.

But a lot of what we did was really just compliance training. “Do what I do, do what I tell you to do, you get something neat if you do.”

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twistmalchik
Fact: Ivar Lovaas, pioneer of applied behavior analysis (ABA) compliance training for autistic people, was first known for using the same techniques and methodologies in the NIH-funded feminine boys study. In that project, Lovaas used ABA to force boys with stereotypically feminine speech, movement, and dress to comply with more stereotypically masculine behavior in hopes this would prevent them from becoming homosexual. What does this tell you about ABA?

Lydia Brown [link] (via twistmalchik)

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