July 2024 article from Science Norway on post exertional malaise in ME/CFS and long Covid
Screenshot from the AMMES September 2024 newsletter
Post-Exertional Malaise & Pacing (8-minute video) (May 2024)
Another useful resource from the Bateman Horne Center
Life with a Low Battery: Living with ME/CFS
From the Bateman Horne Center:
Bateman Horne Center https://batemanhornecenter.org/ understands that it can be incredibly frustrating and difficult to explain how to live in a body that functions differently than it once did. In response to feedback from the lived experience community, we created an animated video, "Life with a Low Battery: Living with ME/CFS," explaining energy utilization in a fun and engaging way.
This video aims to help your friends and family members understand what it is like to live with ME/CFS and to help you identify ways to close unnecessary “apps” (when possible) to conserve energy.
To accommodate the sensory sensitivities of our community, there are several versions of, "Life with a Low Battery: Living with ME/CFS," available for viewing:
Read the content:
A version that has dialogue audio only
A low sensory video with muted colors and no background music
One with full color, with no background music
And finally, a version that includes full color and background music
This is one you may want to share with people in your life who don’t have sensory sensitivities because it is the most engaging version.
You can find links to these in the YouTube descriptions at batemanhornecenter.org. We hope you enjoy this new resource created by the OMF-supported Medical Education Resource Center at BHC, with support from the Whittemore Peterson Institute and our generous donors.
Help make ME/CFS common knowledge by liking and sharing with your friends and family.
Read more about the inspiration behind this video by co-creator and Bateman Horne Center's Education Director, Tahlia Ruschioni. The Story Behind "Life with a Low Battery: Living with ME/CFS."
PEM = Post-Exertional Malaise
"Big Brother’s Chanelle Hayes left bedridden and ‘in pain’ after her wedding"
An example of how postexertional symptoms & payback in ME/CFS occurs after activities of all sorts including pleasurable ones like your wedding
“Why Dianna can’t exercise”
1-minute video featuring David Putrino on Physics Girl’s popular YouTube channel
Watch the full interview here:
From: Notjustfatigue
Contrary to popular belief, the hallmark symptom of #MECFS is not fatigue, but rather post exertional malaise. PEM, or a crash, can occur at any time , after any sort of physical, emotional, or mental exertion. Many people with #MECFS describe PEM as their most limiting symptom. This is the fifth video in a ten part video series by #NotJustFatigue
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Elizabeth has posted this video already on her #Notjustfatigue social media accounts & has kindly given me permission to share it on some other social media platforms I'm on. Please do check out the website for non-profit Notjustfatigue
We are raising awareness about the debilitating symptoms of ME/CFS. Post-exertional malaise (PEM), the cardinal feature of ME/CFS, is the worsening of symptoms (and potential appearance of new symptoms) following minimal physical or mental exertion. It typically occurs 24 – 72 hours following the triggering event but may occur sooner. PEM can significantly reduce the level of activity/functioning of an individual with ME/CFS, and can last for several days, weeks, or longer.
Read more about the experience of PEM: https://bit.ly/expPEM2
Watch the Bateman Horne Center YouTube series on PEM: https://bit.ly/3UTMkJC