Here's the free to use online version (as additional to the word and pdf option of this site). Results can be saved to pdf
Useful 2-page document from Bateman Horne Center
"Pacing for PEM/PESE [post-exertional malaise/post-exertional symptom exacerbation]"
Links in image:
“Why Dianna can’t exercise”
1-minute video featuring David Putrino on Physics Girl’s popular YouTube channel
Watch the full interview here:
We are raising awareness about the debilitating symptoms of ME/CFS. Post-exertional malaise (PEM), the cardinal feature of ME/CFS, is the worsening of symptoms (and potential appearance of new symptoms) following minimal physical or mental exertion. It typically occurs 24 – 72 hours following the triggering event but may occur sooner. PEM can significantly reduce the level of activity/functioning of an individual with ME/CFS, and can last for several days, weeks, or longer.
Read more about the experience of PEM: https://bit.ly/expPEM2
Watch the Bateman Horne Center YouTube series on PEM: https://bit.ly/3UTMkJC
Ed Yong is an award-winning journalist who has been praised for his previous in-depth articles on long Covid
"Pacing is more challenging than it sounds. Practitioners can’t rely on fixed routines; instead, they must learn to gauge their fluctuating energy levels in real time, while becoming acutely aware of their PEM triggers.
...pacing isn’t a recovery tactic; it’s mostly a way of not getting worse, which makes its value harder to appreciate."
One person’s summary: “Ed Yong nailed it again, writing almost an entire article about PEM. He acknowledges all the major difficulties of living with it: The inability to do things you want, the inability to do activities to manage your mental health, that doing one small thing means you can't do something else later, the false accusations it's psychosomatic, and the lack of support people receive.”
From long Covid physio webpage: Post-Exertional Symptom Exacerbation (PESE)
[PEM = postexertional malaise]
The hallmark symptom of #MECFS is Post Exertional Malaise, where minimal exertion can cause a flare in symptoms (a crash) that can last for days, weeks or even months.
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Adam, the creator, is on various other social media platforms
e.g.
https://www.youtube.com/c/BrokenBattery https://www.facebook.com/brokenbattery
https://twitter.com/ABrokenBattery
https://disabled.social/@brokenbattery@mas.to