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Tom's ME/CFS and Chronic Illness Page

@myalgicencephalomyelitiscfstom / myalgicencephalomyelitiscfstom.tumblr.com

Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patient & (amateur) advocate. Posts on ME/CFS and chronic illness/spoonie*/invisible illness.*A spoonie is somebody with a chronic illness who can relate to this analogy https://bit.ly/3MuHKLR
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(Massachusetts, USA)

This exciting study led by a sympathetic researcher has been struggling to recruit for years. It now has this webpage which is new to me. Please share widely.

Rally | Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) patients needed for a PET/MRI study
Is the brain's immune response different in people with and without ME/CFS? To find out, we are looking for individuals diagnosed with ME/CF
rally.massgeneralbrigham.org
#myalgic encephalomyelitis#chronic fatigue syndrome#cfs#mecfs#massachusetts
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How do we find a cure for #MECFS? Stop the lip service and get the government to fund clinical trials for the disease. It’s time to sound the alarm on this health crisis. This is the tenth and final video in a ten part video series by #NotJustFatigue

2/ Elizabeth has posted this video already on her #Notjustfatigue social media accounts & has kindly given me permission to share it on some other social media platforms I'm on. Please do check out the website for her non-profit #Notjustfatigue

#NotJustFatigue - Home
Myalgic Encephalomeyelitis, a disease commonly known as “Chronic Fatigue Syndrome” or “ME/CFS”, is a severely debilitating physiological ill
notjustfatigue.org
#chronic fatigue syndrome#cfs#mecfs#myalgic encephalomyelitis#me/cfs
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Exercise and other forms of exertion can cause profound and lasting harm to people with ME: various forms of evidence

Exercise and other forms of exertion can cause profound and lasting harm to people with ME: various forms of evidence
In this post:
mecfs.substack.com

My 2011 paper, "Reporting of Harms Associated with Graded Exercise Therapy and Cognitive Behavioural Therapy in #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome" included data from earlier surveys and discussed the issue of reporting of harms

Reporting-of-Harms-Associated-with-GET-and-CBT-in-ME-CFS.pdf
Google Docs
#graded exercise therapy#myalgic encephalomyelitis#chronic fatigue syndrome#cfs#me/cfs
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Living in a society that fails to acknowledge the pain and severity of ME/CFS is challenging. Friends and family might not understand the disease, and watching peers continue on with their lives, while the disease takes its toll, can be torturous. This is the ninth video in a ten part video series by #NotJustFatigue

Elizabeth has posted this video already on her #Notjustfatigue social media accounts & has kindly given me permission to share it on some other social media platforms I'm on. Please do check out the website for her non-profit #Notjustfatigue

#NotJustFatigue - Home
Myalgic Encephalomeyelitis, a disease commonly known as “Chronic Fatigue Syndrome” or “ME/CFS”, is a severely debilitating physiological ill
notjustfatigue.org
#myalgic encephalomyelitis#chronic fatigue syndrome#mecfs#cfs#me/cfs
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