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#wtf body – @jezunya on Tumblr
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quixotic chaotic

@jezunya / jezunya.tumblr.com

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Okay it is officially the WORST how acute illnesses amplify the symptoms of chronic illness. Like, I’ve got a cold rn, running a little fever, and out of nowhere my goddamn RIBS hurt. From where I’ve dislocated them in the past. Also the unusual amount/type of pain in my toes & fingers & wrists & elbows all afternoon really makes more sense now. Like this is not normal dislocation/sublux pain. This is something else entirely, like every joint I’ve ever messed up has suddenly just remembered what I’ve done to them in the past and now they’re all yelling at me. Having a fever fucking sucks, because it makes all the old microinjuries from EDS get all pissed off and inflamed again. Just, why is my body so angry whyyyyy

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Sometimes I feel like my body is a screaming baby that can't tell me what exactly is wrong but just that something apparently is, and I'm left trying dozens of different solutions to dozens of different possible problems as I struggle to function through the general malaise that isn't enough to spike above the usual chronic pain hum yet is bad enough to disrupt things like conversations, decisions, and sleep

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God, fuck brain fog. I'm lying here in bed wondering why I'm still awake and why I don't feel sleepy at all, and then I realize I never took any of my sleep meds. I *thought* about how I needed to take them. I took my painkillers. I just somehow never actually took the ones that will allow me to sleep. Fml.

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One of the weirdest and most frustrating things about EDS is having a body that lies to you. Like, I feel hungry constantly, even if I’ve just eaten a huge meal. Other zebras I know feel full after just a few bites. I could have sworn my finger was over one key on the keyboard but then a totally different one shows up typed on the screen, over and over and over. I can’t feel when my bladder is actually full, but then I suddenly feel like I need to pee really bad just minutes after using the bathroom. That shelf was definitely six inches to the left, hasn’t moved once in the entire year that I’ve lived in this house, yet I keep running into it every single day. Waking up and literally not being able to tell where each of my limbs are until I move them. The chronic pain and fatigue are bad enough on their own, but I also have to deal with the indignity of a body that has all but lost any sense of proprioception, inside or out.

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