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#wheelchair – @jezunya on Tumblr
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quixotic chaotic

@jezunya / jezunya.tumblr.com

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We are Jess and Dom, a sister and brother team on a mission to provide stylish and practical adaptive clothing for children with special needs. I’m mum to Willow, a little girl who’s a wheelchair user. Willow is like any other six year old, she’s a style conscious kid who likes to look good, however, getting Willow dressed is a daily challenge and it’s hard to find clothing that can accommodate her disability and her wheelchair.
We know there are many parents and carers out there experiencing the same issues. Here at Willow Bug, we want to take the drama out of dressing with clothing that fits easily over heads, legs, arms and wheelchairs in fantastic styles that kids are going to want to wear.
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Just for once I’d like to tell the gate agents and flight attendants that my folding wheelchair is going into the onboard closet and not have them tell me there’s “no room”. Bitch that’s a wheelchair closet, not a “your bags” closet. Move your damn bags where they belong.

Ok, so according to my friendly aviation expert, this is a Big Fucking Deal. In fact, if an airline argues with you about putting your wheelchair in the wheelchair closet or even suggests there may not be room, unless there is already another passenger’s wheelchair in that closet, they have violated federal law.

CFR Title 14, Chapter II, Subchapter D, Part 382, Subpart E, Section 382.67, Subsection (e)

“As a carrier, you must never request or suggest that a passenger not stow his or her wheelchair in the cabin to accommodate other passengers (e.g., informing a passenger that stowing his or her wheelchair in the cabin will require other passengers to be removed from the flight), or for any other non-safety related reason (e.g., that it is easier for the carrier if the wheelchair is stowed in the cargo compartment).”

This is hugely important because it means that if this happens to you, you should report their asses to the DOT. Why? Because these statistics are published every year for every airline, and the airline gets a huge ass fine for every violation. If we want to see change, we need to make airlines literally pay every time they treat us this way.

@annieelainey you should share this with your followers! This is important info!!

To my mutuals on wheels, print out the law before you fly and whip it out at the gate if they don’t accomodate your wheels.

Thanks a lot for posting this, bro! Flying while crippled is already difficult enough without people pulling this kind of shit. Also, make sure that if there is a piece of your wheelchair or something important missing off of it, that you make a big fucking deal out of it! I’ve had pieces fall off of my wheelchair and nearly lost a decoration I had on it that meant a lot to me because people were careless with my chair. Don’t let them mistreat your wheelchair.

Non-wheelchair folks:

Now that you know, speak up.

You never know when you’re going to see someone who needs an ally.

@thebibliosphere can you reblog this?

I was actually looking for this post the other day for someone who was worried about flying with their chair. I can’t remember your username, but here! this is the thing I was talking about!

Former Alaska customer service rep/trainer here:

If you have an electric chair, confirm that they’re NOT going to carry it down the jetway stairs.

They need to drive it to the elevator (this means they might need a 10second tutorial on how to turn it on). But it takes longer to get someone who has access to drive it to the elevator and instead, the baggage crew invariably tries “save time” and manhandle it down those steep, sharp stairs at the back of the jetway and this is how shit gets busted-up and outright broken. Remind the gate agent that your chair needs to go to the elevator to get down to the tarmac.

Quick tutorial: anymore, the baggage crew almost never works directly for the airline. They’re pretty much all contract companies. Meaning, they don’t report to the same people that your gate agents do. They don’t get the same training and the job is so hard that an enormous number of people quit during the week of initial training. I seldom met a ground crew member who actually knew they weren’t supposed to use the stairs.

So it is crucial that the *gate agent* knows and is enforcing the loading policy.

There is little to no contact between the gate agents and the baggage handlers unless we specifically run them down to tell them something (we couldn’t just call them, we had to go physically find them) and it can be difficult to find someone senior enough to help once boarding has begun, so I recommend touching base with your gate agent about it before boarding begins, when possible.

At least on Alaska, it was expressly forbidden for baggage handlers to carry electric wheelchairs down the stairs and it still happened all the goddamn time. If you have to, remind the gate agent that the airline is 100% liable for any damage done to a mobility device. This is true (and also an enormous pain in the ass for you) and sometimes may strike fear into the hearts of a reluctant (read: shitty) agent.

If they cannot/will not confirm, or just seem to deflect or dodge the question, don’t get out of your chair. Sit right there in the bottom of the jetway and tell them that you’ll wait until the crew supervisor arrives with the elevator key (this was always this issue, most of the ground crew didn’t have access so they needed a crew supervisor or an actual airline manager) to surrender your chair. They will probably continue boarding around you, that’s fine–if they did not build enough time into the schedule to properly load the aircraft, that’s their fault, not yours.

It deeply angers me that you have to be so knowledgeable about every tiny damn policy just to do something as simple as board a fucking plane. The only other insight I can give is that after safety, the airlines’ next biggest concern is being on-time so if you’re not being heard or helped:

Make. Them. Wait.

Agents deal with distressed people all day. Getting screamed at or cried on can happen dozens of times a day (and for most people, think 10-12 hour days). Some agents get hardened to passengers’ distress as a coping mechanism (or just because they suck, that’s true sometimes, too). But they all have a manager breathing down their neck to push planes on time. Very few non-safety problems will get addressed as quickly and concisely as one that is threatening to delay a departure.

I think I’ve reblogged this post in past but new info has been added

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sapphogirls

wheelchair sapphic moodboard

[Caption: the nine pictures are: a shirt with the international symbol of access in rainbow colors, a woman smiling and posing for the camera on their wheelchair, an elderly couple dressed in fancy pastel clothes in their wheelchairs, a woman with her wheelchair on a bridge smiling at the camera, 

a picture of a solitary wheelchair, a picture of Frida Kahlo painting while on her chair, two elderly women sitting with their wheelchairs in the ocean, a wheelchair user wearing ballet clothes, and the international symbol of access.]

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Wheelchair Troubles

To my spoonies who use wheelchairs: HELP.

I am considering starting to save for one, but the process scares the hell out of me. I have fibromyalgia, asthma, chronic undiagnosed pain disorder, and weak and frequently injured joints (as well as a few unrelated problems). These things lead me to have increasing difficulty walking and climbing stairs, especially for distances. I get winded and sore from walking from the car to the entrance of Walmart! But I am a broke independent college student, so not only do I not have the money to get one, but have no guidance on where to start. 

How do I choose from manual vs. electric?

How do I choose the model?

How do I know which size will work best for me?

Which kinds fit in small cars best?

How light do they come?

Does Medicaid cover any of the cost?

Do I/HOW do I get a Rx for it?

I need help. Advice?

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reblogged

I got my first set of autumnal photos back from Fusco Photography and I absolutely love them. Autumn is probably my favourite season and these photos perfectly capture why.

Getting photos like this are so helpful in getting me to accept every part of myself with all of my mobility aids includes. I’m disabled and fat and sometimes I feel a bit down given that this time last year I was an athletic dance teacher and aerialist but things like this really help me love who I am now, illness, weight and all.

My name is Lizzie, disabled and plus size, and I am chronically fabulous.

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madneto

okay, i’m just putting this out here because it needs to be said and i’m sick of letting the bullshit train continue when i could help stop - or at least bring attention to - it. i have a friend who is diplegic and therefore uses a manual chair (her twin was also quadriplegic and in a motorized chair) and when we watch movies with wheelchairs in them, we like to critique the designs.

do you know why mcavoy couldn’t/can’t drive his motorized wheelchair? BECAUSE THE FUCKING WHEELS ARE ON THE WRONG WAY. HANK MCCOY, WHO IS SUPPOSEDLY A “GENIUS”, DESIGNED THE WHEELCHAIR SO THE BIG WHEELS ARE ON THE FRONT AND THE SMALL WHEELS ARE ON THE BACK.

LOOK!

LOOK AT THIS ABSOLUTE BULLSHIT. DO YOU KNOW WHY HE CAN’T DRIVE IT? THE SMALL WHEELS ARE AT THE FRONT BECAUSE THEY ARE SMALL AND THEREFORE ALLOW FOR LOTS OF FINE CONTROL, AND THE BIG WHEELS ARE AT THE BACK BECAUSE THEY OFFER POWER. WHEN THE BIG WHEELS ARE ON THE FRONT IT IS SO DIFFICULT TO CONTROL WHERE YOU ARE GOING. IT’S LIKE WHEN YOU WALK BACKWARDS ON A BIKE AND TRY TO STEER STILL WITH THE HANDLEBARS. I SAT BACKWARDS ON MY FRIEND’S MANUAL CHAIR AND TRIED TO WHEEL MYSELF. IT WAS LIKE COMPLETELY REWIRING MY MOTOR SKILLS EVERY SECOND I WAS MOVING. IT. IS. BULLSHIT. AND ALL OF CHARLES’ CHAIRS ARE LIKE THIS!!! HANK!!!!! WTF!!!!!!!

ALSO. Charles would have THE WORST backpain from that stiff-ass unnecessary fuckin metal backrest that goes all the way up. YOU KNOW HOW PEOPLE’S BACKS GET UNCOMFORTABLE WHEN SITTING FOR HOURS ON A LONG PLANE OR CAR RIDE???? YOU KNOW THAT FEELING??? THAT FEELING IS THIS CHARLES’ LIFE, OKAY. HIS BACK HAS TO BE UNNATURALLY STRAIGHT ALL THE TIME. THIS CRITIQUE IS TAKEN FROM MY FRIEND’S EXPERIENCE BECAUSE SHE ALSO HAS A HARD BACK CHAIR AND HAS BEEN TOLD SHE’S GOING TO HAVE AWFUL BACK AND SHOULDER PROBLEMS BECAUSE OF IT. YET HARD BACKS ARE STANDARD AND SLING BACKS - LIKE THE ONE I’M GOING TO SHOW YOU IN A SECOND - ARE NOT! THIS IS BECAUSE THE WHEELCHAIR-GETTING SYSTEM IS COMPLETELY BROKEN AND IT’S SOMETHING YOU SHOULD REALLY CARE ABOUT BUT IT IS A RANT FOR ANOTHER DAY). THE POINT IS, CHARLES’ BACK IS ONE HURTIN’ UNIT IN THIS CHAIR I GUARANTEE YOU. HE OBVIOUSLY DOESN’T NEED IT FOR TRUNK CONTROL. HE HAS AMAZINGLY FREE RANGE OF MOVEMENT ABOVE HIS HIPS. THIS CHAIR IS  B U L L S H I T. HE CAN’T DRIVE, HE CAN’T SIT UP IN A COMFORTABLE WAY. POOR BABY IS H U R T I N G  but right, Hank’s ~~a genius~~

In contrast, look at this chair!

Look at those tiny-ass wheels on the front! The user of this could spin ON A DIME. It’s Nice as Fuck. Look at that back. (Okay I’m not 1000% certain it’s a slingback) but it doesn’t go all the way up the user’s back! That’s some free-range-of-movement-let-your-spine-do-almost-anything-it-wants-shit right there. Since Charles pretty clearly has full use of his trunk in the movies, this would make much more sense. Also, Ann (friend) and I really don’t see why he would want an electric wheelchair when he clearly could have a manual one that allows for even more control. 

AND OKAY, all wheelchairs should be specific to their users. Some people need more back support. In Ann’s quadriplegic brother’s chair there was a neck brace and little wing things on the side that came out and clamped around his body. Some people’s foot rests need to go out like Charles’ does (whether or not he requires this is kind of foggy, espc. since the overall design is so. asinine.). Some need their footrests to be more in like the orange chair. Some people get tilted wheels, some people don’t. (Also the process for deciding this is bullshit - on government insurance they will only build your chair with the assumption that you will never leave your house and therefore it’s almost impossible to get ‘add ons’ like sling backs and tilted wheels and under-the-seat brakes WHICH SHOULD BE STANDARD, AGAIN, BECAUSE IF YOU DON’T HAVE THEM YOU COULD HAVE MORE MEDICAL ISSUES DOWN THE ROAD OMG THIS SYSTEM IS SO BROKEN). 

But I think we can ALL fucking agree that your wheels should go on the goddamn correct way so you can, you know, steer. And that maybe your chair should be designed more like a mobility assistance device than a fucking 1860′s gentleman’s club wingback for no goddamn earthly reason.

SHIT this stuff gets me riled up.

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spiftynifty

wow this is really interesting and makes a lot of sense! New headcanon is that Charles only uses the ridiculous X-chair when he’s teaching a class but the second he has spare time he settles into a wheelchair like the one below and just goes “aahhhhhhhh”

@spiftynifty is absolutely right, I was about to criticise his wheelchair as well, but then I noticed that he uses a completely different one when he is actually outside with Hank and Summers brothers (sorry for super bad quality)

Let me reblog this with an addition because YOU SHOULD STILL ABSOLUTELY CRITICIZE HIS WHEELCHAIR. Yes, he uses the manual wheelchair outside. Wanna know why? 

Regular motorized wheelchairs are REALLY REALLY heavy. Charles’ motorized chair, even if its a light weight alloy, is made ENTIRELY out of metal. It’s probably too heavy for wheeling through gravel and across the lawn. He would sink. Also, let me re-iterate, ITS WHEELS ARE CONSTRUCTED ENTIRELY TOO POORLY TO HAVE ANY CONTROL WHATSOEVER. THE *WHEELS* ARE GODDAMN METAL, IMAGINE WHEN ITS ICY OUTSIDE. YEAH. YEAH, IT’S NOT GOOD. And when it’s not icy and he’s trying to wheel across the grass with those stupid-ass wheels – into the pond he goes. Also, Hank put the motor like one fucking inch off the goddamn ground so when the HEAVY WHEELCHAIR inevitably SINKS………. Yeah. Charles is up the creek without a paddle.

As for this manual chair, it is also subpar. Although the wheels are mercifully in the right place, it looks too small for him. The wheels need to come up higher so that when he wheels himself, the rim grips are right there. Also, his arms should be able to go back pretty far on the wheels. Where they are now, you can only get a little bit behind your hips (again, speaking from experience). The high back on this chair AGAIN restricts his movement in this aspect. Charles probably will have shoulder pain that may result in surgery down the road with this chair (because it looks SO MUCH like Ann’s chair and that’s exactly what Ann has been told will happen to her). 

Second of all: I understand you’re just trying to make canon work and are not being bad people (please believe me, I know this), but absolutely no disabled person should have to switch chairs for mobility purposes multiple times a day. These chairs should be built for every day needs. Is wheeling on carpet a bitch with a manual chair? YOU BETCHA! Easy fix: take away the rugs; it’s Charles’ house. Is it more exhausting to go up hills in a manual? Oh my god, I don’t know how people do it, it is the worst. But maybe that’s a struggle that should be shown, instead of magically having him transfer to a new chair whenever a new problem arises? Think: would you like to cart around 47 different mobility devices that you would have to transfer in and out of just because your house and/or your chair, is not built for your life convenience? Maybe they should just build the chair better. It is a part of Charles and it always will be. BUILD. IT. BETTER. Charles is lucky enough to be a multimillionare with his own lab/engineer to build chairs for him. Hank is 100% capable of making a chair that would defy any disabled person’s wildest dreams. Except…. it’s apparently more important that we just make the chair “look cool”. Never mind that 1. It doesn’t, 2. WHEELCHAIRS THAT WORK FOR DISABLED PEOPLE ACTUALLY CAN LOOK COOL TOO!! WHAT A CONCEPT.

I am just sick and tired of the way disabled people are portrayed in film and media 99% of the time. Wheelchairs are not sick gadgets to do whatever the fuck you want with. They are actual mobility devices that millions of people use, and truthfully representing the lives of those people is important. And hey, wheelchairs are fucking cool! They don’t need art direction to make them be chill! They just need good design, that again, reflects the ACTUAL LIFE the character lives. These are MOBILITY ASSISTANCE DEVICES. They are their legs. It is completely impractical and inconsiderate to think that a disabled person should just hop from chair to chair whenever the need arises.

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electraposts

Well, that was almost a spiritual experience. Thank you for that, madneto. I learned a ton from your righteous wrath.

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I’ve lowered the footplate since and fixed my jeans(???) since the photo, but look what I picked up today! It fits pretty well, is very easy to propel and is helping my pain and fatigue a lot already.

Got it cheaper than the asking price and was just about able to afford it! 😄 It’s a Quickie Helium, for those interested.

Thanks to the folks who helped me get it 💚💚💚♿

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65pinkroses

When you try to channel your space mom 🌟

UPDATE: SPACE MOM WANNABE MEETS REAL SPACE MOM!!! She was so great and loved my look + chair! And had great insight into having an illness when I asked “I’d rather have my own definition of my condition than anyone else’s”

this the kind of stuff I love seeing 👌🏼

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reblogged

Exhausted but happy and looking fine today. This trip has been really good for me, last day today tomorrow I get a train back to Nottingham. But off to meet a friend for coffee and saw a friend who I haven’t seen in way too long yesterday. So it’s been and going to be a good couple of days.

Tags: #Me #Selfie #Intersex #Queer #Demigirl #Enby #Trans #Transfeminine #Wheelchair #Fibro #CripplePunk #Autistic #ADHD #BPD #CPunk #WheelchairTravel #WheelchairTraveller #WheelchairBackpacker #WheelchairBackpacking #ActuallyIntersex #ActuallyAutistic #ActuallyADHD (at Greenwich Travelodge)

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