I had a friend tell me once that they envy me having a terminal condition because I don’t have to figure out my future.
And like. I get depression and fear, and adulting is fucking hard, and sometimes when I’m really sad I think this too.
But please don’t tell your spoonie friends you envy them being sick, and not going to school, and “sitting at home watching Netflix whole days everyday”. We’re ILL. We’re in a lot of pain. This sitting in bed whole days is fun when it’s a cool activity to do, but it stops being fun when it’s a necessity everyday and you want to do things but you CANT.
And the thing is, we’re having to figure out our future too. It’s just for you figure is college and job and happy relationships. For us it’s our condition getting worse, our parents aging and so us having to find caretakers for us when they’re gone, and ultimately a lot of sadness and then dying.
We’re both scared and I’m not playing pain Olympics here. I’m just here to tell you that sometimes it’s good to shut up.