#autoimmune – @izzyizumi on Tumblr

Not all #LongCovid is #myalgicEncephalomyelitis.

While its super important to raise awareness of the simularities of the #millionsMissing with #MECFS and #millionsMore with #LongC it is also essential to recognize that only a subset of #covid #longhaulers meet the criteria for a diagnosis of ME.

ME aka #ChronicFatigueSydnrome is not the same as #chronicFatigue. The defining symptom of ME / #CFS is #PostExertionalMalaise or an exhasurabtion of metabolic, neurological and immune dysfunction symptoms 24-48 hours after exertion.

When you are talking about long covid patients who experience #PEM you should talk about MECFS because that is what these patients have.

When you are talking about long covid patients be clear that only the subset with PEM have MECFS.

It is important for patients with long covid to receive the correct diagnoses, because while there are no FDA approved treatments for ME, many commorbidities do have effective medication options. Management of ME must also be tailored based on a patients commorbidities.

Patients with MECFS and post viral fatigue syndrome must not be prescribed GET or CBT. This includes all long covid patients with PEM.

Long covid patients who experience PEM should be advised to #StopRestPace and informed about the importance of pacing agressively not just to prevent symptoms from fatigue but to prevent PEM in the following days. This is regardless of whether they have PVFS (less than 6 months post covid) or MECFS (more than 6 months)

Because long covid is a broad category that encompasses patients MECFS #MCAS #fibromyalgia #POTS #dysautonomia #autoimmune and #autoinflammatory diseases in many combinations the prognosis for long covid patients is much more variable than that of ME patients and recovery is more likely in early stages of ME, long covid patients who recover should not generalize their experience onto MECFS patients more broadly and should continue to support MECFS research.

MECFS patients have decades of experience with pacing, medical gaslighting, chronic illness, housebound and bedbound life and more. We hope that #covidLonghaulers will #LearnFromME and ally with us to end #postViralIlness

#covid #covid informative #long covid #long covid informative #current events #health informative #health infographics #infographic #symptoms #physical health #autoimmune #chronic illness #chronic fatigue #chronic fatigue syndrome #myalgic encephalomyelitis #text heavy #very long post #signal boost #*PLEASE REBLOG IF POSSIBLE #(Information I wish I could beam into the heads of every single person I come in contact with Yes Even You)#(I knew about a lot of starting info in regards to the not Covid conditions but even still learnt some things from this)#COVID IS NOT OVER #stop trying to convince disabled people that covid is over #I DONT KNOW WHO NEEDS TO HEAR THIS #(You know what I was holding back from spamming this side with informative posts as much but now have determined this NEEDS to be here too)#(The only thing Id correct is calling Covid simply a 'disease' because its in actuality much more than that DUE TO All This)#(But more on that Later)#not dgmn #this is important for everyone #GET VACCINATED AND YOUR BOOSTER SHOTS