flower crown crip

Hi, My name’s Echo, my pronouns are he/they, and I’m 25.

I have multiple conditions resulting in severe disability. I’m a full-time powerchair user and transfer using a hoist. I need 24/7 care to keep me alive.

Typing using a phone or keyboard it's difficult for me so I use dictation software a lot. This can lead to some weird typos, please be patient and kind.

If you need anything I say to be clarified or put in simple words, just ask and I'm very happy to do that for you.

I try and add image descriptions to everything I re-blog, but this is harder using dictation software so please bear with me. All images I post are described.

I’m not comfortable around disability fetish blogs –especially the people stealing random disabled people’s photos to post to porn blogs. If I see you, I will block you

Header image description: a digital painting of a row of brightly coloured sporty anyway mushrooms.

Profile image description: a digital drawing of Echo, a white person with green glasses and long brown hair and a beard sitting in a green electric wheelchair with a four point chest harness.

Devotee/ diaper fetish blogs DNI

Doing my best to relax tonight. If this doesn’t help me sleep tonight, nothing will. Wish me luck!

I noticed a young autumn flowering Cherry while on a walk the other day. I found the combination of warm autumnal leaves and spring like pink blossom really captivating and beautiful, so here is a quick painting of it I did while resting today

ID: a water colour style digital painting of a young autumn flowering Cherry tree. The tree has autumn coloured leaves cascading down along thin trailing branches, as well as a delicate adornment of blush pink blossom. /end ID

Given that I’m going to be spending a lot of time resting in the near future, if anyone wants to send me any asks about anything, it would really help to pass the time and I’d really appreciate it!

I went to the market! It was really lovely to be out in the sunshine.

The candle person I was planning to go to wasn’t there today, but I managed to get a nice festive candle from the fancy hippie shop right by the market. It smells of pine, orange and spices and I’m looking forward to lighting it once my current candle is finished.

I think I stayed a bit too long though because I became quite overwhelmed with the hustle and bustle of the market and was absolutely exhausted by the time I got back. But after some time in the dark in bed I’m feeling a lot better. So totally worth it overall

I’m looking out my window and the church tower is just visible again for the first time this year! In the winter it’s the main feature of the view from my flat but over summer it becomes completely obscured by the leaves on all the trees

It’s also a beautifully sunny day outside, so I think I will go and treat myself at the market after all

I’m trying to decide if it’s worth it to go to the market today or not and I’m so torn

On one hand I really should be resting today given that I’m in a flare and got another very poor night of sleep

On the other hand it’s only a few minutes away and I’ve had a tough week, and an even harder one next week and would really like to treat myself to something nice

Fuck it I’m awake from pain. Might as well start the day I guess.

I'm trying to make myself feel better by burning a scented candle, and honestly it's kind of working. When I'm feeling up to it I might treat myself to a fancy one from one of the artisans at the market

I’m back from work, and completely exhausted. I’m in bed now waiting for my pain to get to a point where I can sleep. I have also cancelled swimming/ seeing my mum tomorrow because my body is screaming at me to rest and I need to listen.

I don’t seem to be going down with any kind of infection which on one hand is good, but on the other hand it means I’m probably in the beginnings of a disability flare, which makes sense after taking the youth groups away for the weekend. Unfortunately this means I’ll need to be really careful with my activity levels for a while to avoid permanent/long term damage.

My normal day to day life is a balance between doing enough to keep me mentally stimulated and avoid physical deconditioning, and resting enough to not cause harm by overdoing it. When I’m in a flare, that balance becomes more like a tightrope walk.

If I’m lucky it will only be a few weeks, if I’m less lucky it can last months. It’s so frustrating to have to cancel plans, but I feel like I’ve noticed in quite good time that something is wrong and hopefully by cancelling the things I can in advance, it will mean I can stay one step ahead and not have to last-minute cancel the things that really matter.

It’s frustrating as hell, so I’m trying to be extra kind to myself and really prioritise self-care.

Can’t believe I have anti vaxxers in my notes in 2024. Some people seriously need a hobby

I went to the river today and saw a seal! They come up with the high tides to hunt fish, and the town where I live is the highest point in the river they’ll come to.

I didn’t get far along the river today which was a bit disappointing, but I’m still not feeling anything like my best, and I could tell my body wouldn't be able to handle the Stony path after the smooth tarmac runs out.

Still, it was so lovely to be out!

I’m feeling a bit better than I did this morning but still not great. I really hope I’m not coming down with something

I called in sick this morning for disability reasons for the first time in over two years. I’m usually so good at managing things, while I’ve taken annual leave for medical appointments and rest , I’ve never had to call in sick on the day while I’ve been at this job. But today I woke up and my body chose violence and I was unable to tolerate any position except horizontal and nothing I could do was helping.

At the time I felt too awful to really process it emotionally, but I think I feel some mix of proud to have listened to my body and put myself first, and upset that my body is doing this.

I’m so lucky to have a workplace that doesn’t see calling in sick for a disability as being unreliable.