ddailyspoonie-blog reblogged
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@ddailyspoonie-blog / ddailyspoonie-blog.tumblr.com
How we feel when we find out we can actually lift 1lb
[GIF of Lou Ferrigno as The Hulk (a tall, fit man, painted green with no shirt and cut-off jeans) looking down and flexing / screaming.]
Symptom 1 and Symptom 2,
This one’s old, that one’s new.
I thought my body was mine to rule
But it looks like I’m again the fool.
One thing goes wrong after another,
And I’m left attached, feeling smothered.
Brought to my knees again tonight,
Crying, aching, giving up the fight.
If I could sleep it might improve,
But late at night I cannot snooze.
Spoonie life is hard to take,
I may bend but I’ll…
When I’m out with you… I may look and act like this:
But inwardly I’m like this:
(because sometimes I don’t want to be the ‘ill’ person. I just want to pretend to be happy and ‘normal’)
Fighting the urge to fall asleep all day, and then when it is actually time to sleep, you are not able to (due to too much pain/symptoms or suddenly being the most alert you have all day).