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My journey as a spoonie

@ddailyspoonie-blog / ddailyspoonie-blog.tumblr.com

| A blog of someone with an invisible illness and many mental illnesses. Dedicated to all the lovely spoonies who need some inspiration and a friend to rely on. | Daily look into my life, with many relating posts. |
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unguarded-angel
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mscourtneyreads

Spoonie Poem

Symptom 1 and Symptom 2,
This one’s old, that one’s new.
I thought my body was mine to rule
But it looks like I’m again the fool.
One thing goes wrong after another,
And I’m left attached, feeling smothered.
Brought to my knees again tonight,
Crying, aching, giving up the fight.
If I could sleep it might improve,
But late at night I cannot snooze.
Spoonie life is hard to take,
I may bend but I’ll…

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#spoonie#spooniestrong#spoonies#invisibly ill#invisible illness#chronic pain#chronicallyawesome#chronic illness#chronically ill#chronic fatigue#eds#pots#fibrowarrior#fibromyalgia#spoonie poem#cfs
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Hi there all my lovely spoonies! Last night, my bestfriend send me this picture. Someone from buzzfeed has made an article of us spoonies! Me and my bestfriend were so happy when we saw this, because this writer included one of my posts in it and instantly made me gain alot of new spoonies (supporters)! Thank you guys, and don't forget to take a look on buzzfeed. The link is down below! https://www.buzzfeed.com/ailbhemalone/posts-about-having-an-invisible-illness-that-will-make-you-l?utm_term=.wcMGNMz9q4#.nsDkNq1v32

#spoonie#spoonies#invisible illness#invisibly ill#chronic illness#chronically ill#fibromyalgia#eds#pots#spooniestrong
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reblogged
thatspooniefeel

Something I wish my friends would be aware of when we're out...

When I’m out with you… I may look and act like this:

But inwardly I’m like this:

(because sometimes I don’t want to be the ‘ill’ person. I just want to pretend to be happy and ‘normal’)

#spoonie#spoonies#spoonie humour#spoonie problems#spoonie strong#disability#chronic pain#chronic illness#chronically ill#chronic fatigue#invisibly ill#invisible illness#eds#fibromyalgia#fibrowarrior#cfs/me#cfs#pots
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reblogged
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plasmastainedbones

Things people newly diagnosed with chronic illnesses should know

Symptoms fluctuate

Bad days don’t last forever

Good days don’t mean you’re faking

If you think your doctor is wrong, you have the right to say so

Likewise, if you think your doctor is ignoring you, you have the right to say so and demand a new doctor

Don’t be afraid of mobility aids

You don’t have to answer strangers’ questions

Your life isn’t over

Some people might leave. They don’t matter.

The people who support you are great

You are allowed to complain

You’re not worthless

You’re loved and supported even if it doesn’t always feel like it

You are not alone

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chronicillnessproblems

Also, it’s okay to have trouble accepting any of these things, and your feelings are ALWAYS valid. 

It’s a never ending grieving process. You go through all the stages time and time again. And that’s normal.

#spoonie#spoonies#disability#invisible illness#chronic illness#invisibly ill#cfs/me#pots#eds#fibromyalgia#chronically ill
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thisineffableepoch

A Classic Spoonie Verbal Transaction

Doctor: *shakes your hand* How are you today?
Me: um, I'm okay...
Doctor: Great! I'll see you next time!
Me: um... no, i said i was okay because that is a thing people say to the question; how are you? if you had asked me; has your chronic fatigue improved lately? is there any change in your levels of pain? are you more or less nauseous than normal?
#spoonie#spoonies#invisibly ill#chronic fatigue#chronically ill#chronic illness#disability#cfs#me/cfs#fibromyalgia#eds
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reblogged
pompomcake
What It’s Really Like To Be Chronically Ill Lauren Anne Society’s recent obsession with cancer stories and movies like The Fault in Our Stars made me realize that the average person doesn’t know what it’s really like to be sick. Chronically sick. What it’s like to wake up every morning and know you’re never going to get better. No amount of medicine, doctors, surgeries, and procedures can fix you. I think the reason why people today love to hear about cancer stories is because they are just that. They are stories. They have a beginning, middle, and an end. While that end may not be a happy one, people are satisfied with closure. But my story doesn’t have an end. And people don’t seem to like stories without an ending. Being sick isn’t as glamorous as they make it out to be in the movies. And unlike cancer perks, there are no “chronic illness perks.” Except maybe those really good lollipops at the doctor’s office. Those are definitely a perk. The worst part about being chronically sick isn’t the physical pain, it’s the emotional pain that goes along with it. You reach a point where you can’t hold back the tears any longer and suddenly you’re breaking down in the middle of a doctor’s office. You think you can escape the emotional torture; your disease is purely physical, right? The worst part is that there is no escape. There is no light at the end of the tunnel. There is no happy ending. There is no way to make the incurable go away. We learn to tolerate the physical pain. You have to. But it’s the overwhelming emotional burden that makes you feel like someone is holding your head down in the water. You can fight it, but you can never overcome that crushing feeling. How are you supposed to get rid of an emotional suffocation when the source of it is never going to go away? Being sick is being stuck in the eternal clutch of the unknown. Any day anything could go wrong, or at least more wrong than it already has. It’s so hard not to feel anxious or depressed or completely lost when all that lies ahead is a giant question mark. You rarely seem to get answers when you are sick. And when you do, they’re often the answers you wish you hadn’t heard any way. There’s one thing every single sick person wishes for, but rarely gets. Hope. Hope that one day things will get better. Hope that there will finally be a day when your pain is a zero on that silly little scale. Hope that one day you’ll get a glimpse of normal. I know technically being sick means my genes suck or my body just plain hates me, but somehow being sick has made me better. I may be biased, but I think that sick people — especially young sick people — are some of the best people you will ever meet. Now don’t get me wrong, healthy people are great too. But when you’re sick, you understand things that other people might take for granted. You learn to love every good second, every good minute, of any of those few good days you might have. You don’t fear death because you’ve already stared it straight in the face quite a few times. You know it’s not important to dwell on the little things. You have more important things to worry about. So as many times as I’ve wished to be normal for even just a day, I’ve appreciated my life, both the good and the bad, so much more as a chronically ill young person that I ever could have as a regular teenager. Being sick makes you strong. Being sick makes you weak. Being sick gives you insight and knowledge about life as it eats away at your own. Being sick is the greatest blessing in disguise. It is so much more than just having an illness. It’s having your entire life be taken out of your control, and fighting to get it back. And that fight will never end.

“what it’s really like to be chronically ill” by Lauren Anne (via cinensis)

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