Why can’t I ever find a comfortable sleeping position!!!!!!!!!!!!!!!!
Got some cheapo finger braces to try out before getting better and ones and holy shit I did not realize my fingers were This bad. Apparently it takes two braces on one finger for it to behave normally…. Wild
I probably need to be much more careful about my joints but I have no idea how to stop popping my fingers. I know how dangerous it is for me but I can’t stop. Please if anyone has ideas or has gone through this let me know.
My knee has been fucked up all day and I have absolutely no idea why
I fear the EDS is finally starting to get bad
Violently happy hand flaps quickly become a dangerous game when you have EDS
Went to the gym yesterday to do my fancy PT exercises and I got to lift some weights (carefully so I don’t fuck up my joints) and now my arms are aching
#dude it felt so good though#I haven’t been able to lift weights for years out of fear of fucking up my joints further#and now I know how to safely do it#it feels great#I’m really enjoying being able to go do some exercise even if it’s not very much#v says things#EDS#elhers danlos syndrome#hypermobile ehlers danlos
Maybe I need to start thinking about getting the little finger braces for EDS. I’ve been having more trouble keeping my fingers from overextending recently and maybe I should take that seriously
Did a puzzle at the living room table. My back and knees are not happy with me
Was trying to do my nightly exercises and for some reason it hurt my back….. that’s not good.
Doubling up my knee braces to go to the store to get something for my mom. Why are my knees garbage
Do you ever just shift slightly and one of your joints cracks so loudly and violently you’re genuinely surprised that it didn’t break something, or are you normal?
They should make showers less exhausting and horrible
Can I just rant for a second about how annoying and frustrating it is to wash your face and all that stuff while not being able to stand very long
I’m speaking directly from my own experience so this definitely isn’t how all disable people feel about this (obviously)
But I hate doing stuff where I have to stand at the sink. Brushing my teeth is miserable because I’m just leaning against a wall for however long, I almost never brush for a full 2 minutes. I’m not proud of it but I’ve only just gotten into the habit of brushing at least once a day because it’s so annoying and frustrating. (It’s also very loud and I hate toothpaste but that’s more autism stuff)
I only wash my face in the shower now cause you can’t really sit by the sink while washing your face, you have to be over the basin. My skin is not happy about this. And I only use a cleanser. Sometimes I use moisturizer but not often (I hate the sensation of it)
Just these small things are so annoying and inconvenient when you can’t stand for long.
Vent‼️
Why do I feel like shit all the time. Can’t I have one day without pain or exhaustion or nausea? Please. Can I just feel okay?
#i can’t take it anymore#no one has been able to help at all#and I just want to cry and scream and lay down and die#I want it to be over#I’m so tired of living like this#don’t worry I’m not gonna do anything#but I wish it would stop#I wish I could feel like me again#I wish I could be whole#v says things#vent#chronic illness#elhers danlos syndrome#postural orthostatic tachycardia syndrome#EDS#pots
Why is my body like this. Why does it hurt for no reason. Net painful or constant enough to do anything about it but so so annoying. Why is it only getting worse. I’m so tired
dapperenby13 reblogged
we’ve made autism into a small insignificant personality trait/identity like being queer and that’s actually so fucking wrong and insulting
40% of autistics have an intellectual disability
40-60% of autistics are nonverbal
most autistics will not be able to hold a job, go to college, or live on their own
autism rarely travels alone and has many medical comorbidities like epilepsy, mitochondrial disorders, and genetic disorders (which are the most common comorbidities - these aren’t rare complications.)
we can have discussions about autism and ableism and how society sees us without spreading misinformation.
autism is a lifelong, often debilitating neurodevelopmental and genetic disorder that affects how one communicates and interacts with the world. it is not “just being socially awkward” or “social anxiety.” it is a neurological disability. start treating it like one.
#yeah#I have#elhers danlos syndrome#probably as a comorbidity.#that shit is destroying my joints#I don’t know if I’ll ever be able to move out or have a job#I have a high iq but might never get an actual job#I can’t live without headphones blocking noise#I have meltdowns when people ask me to do things sometimes because it’s all just to Much#it’s hard to be autistic#and I wouldn’t change it#it’s part of me#but damn do I wish the world could get a grip and make it easier for us to survive and thrive#hell I didn’t even graduate high school#I had to drop out cause my body and mind physically couldn’t handle it