One of my family members told me the other day that the acute symptoms she was experiencing from a cold were worse than my symptoms because I’m “used to mine.”
Unfortunately, this is a common misconception. A lot of people don’t realize that we never fully get used to the pain, fatigue, and other symptoms that our chronic illnesses cause. No matter how well we learn to cope, our symptoms still affect us on a physical and emotional level.
here's a list of things i think abled people should know,, especially since it's disabled pride month!
that's all i could think of,,but feel free to add on! :]
Hey all! Recently gotten into a debate with someone about why it’s not a particularly lovely idea to make jokes about “those attention seekers” that use crutches or joint supports...
Can you do me a favour and like or reblog this if you have ever had rude comments made to you (as a disabled person) about your supports/mobility aids that has made you feel uncomfortable or self conscious?
Trying to prove a point that “well we only say it about the actual attention seekers!” absolutely does not work as you have no way of knowing why someone needs an aid.
I still don’t have many joint supports because people believe that they will cause muscle atrophy that will make my condition worse. The only ones I own are soft wrist compression braces that I bought myself. The ones I should have are hundreds of dollars.
Hey everyone! I was just wondering if any of you had any advice for dealing with heat intolerance. I have a roadtrip to Yellowstone coming up and get really really sick in the hot and I get motion sickness and we'll be in the car for hours at a time for days at a time I an environment that is much hotter than where I live. I'm kind of scared that I'm going to spend the entire time feeling nauseated
If you can, pick up as many disposable cold packs from a pharmacy as you can. There's ones you can shake and they get cold for a while.
Hand fans are your friend. So is breezy clothing, don't wear synthetic fibers if you can avoid it, they don't breathe a bit.
Drink drink drink. As much gatorade as you can manage- The better your PoTS is managed, the easier the heat will be.
Try and get a water bottle made to stay one temperature. And fill it to the brim with ice whenever you can.
Wear compression socks. It may make you warmer for a bit, but it will lessen the effects of your PoTS.
And the MOST IMPORTANT THING: If you're feeling ill, IMMEDIATELY TRY TO COOL OFF. Don't try and stick it out. Us Potsies are far more susceptible to things like heat stroke. If you start to feel light headed, get to a safe place and lie down.
The reason we feel so bad in the heat is that heat relaxes us. It opens up our blood vessels more, making our blood move even worse than it already does. Treat the PoTS, and the heat will get easier.
TL;DR: Cold packs from a pharmacy, hand fans, light natural-fiber clothing, hydrate, compression socks. And remember: SAFETY. COMES. FIRST. If you feel too sick, if you feel light headed/dizzy, go lay down and try to cool off.
Thank you for this! I struggle a lot with heat intolerance despite technically having a different diagnosis.
