(((I Will Outlive)))

I don’t think healthy people every really get chronic illness.

I have a friend I know from when we were both 6. She is the only person living nearby and so she saw me go from walking through limping to wheelchair on a daily basis. I keep her updated on my health even tho we rarely hang out anymore. She was gonna come over yesterday and I had to cancel. She asked if I can’t hang out later that day. When I said i won’t feel better later, that if I feel that bad in the morning later will only get worse she got annoyed and “joked” that I’m just finding excuses. And I was surprised, she knows all about me being disabled after all? So, a bit taken aback, I told her it’s a normal thing for me.

“But you got the diagnosis now, aren’t you better?? I thought you’ll get better now”

She was honestly surprised and it made me realize a thing. They don’t get it. They don’t get that getting diagnosed only equals benefits like welfare or parking spot for us, and sometimes better pain meds but that is just like pushing luck. That it’s a forever thing. That that one day we felt good a week ago was just a bright spot and doesn’t mean we won’t need our aids anymore, cause chronic illness is not linear and will make a great comeback in next four hours, and the next good day is planned on when we’re 70. Cause when abled people are sick, they get better. And our illness is just an excuse for them. And when we say we will never get better they think we’re being dramatic and pessimistic. And I don’t think they’ll ever get it, cause to get it you need to live it. And I want my friends to stay healthy and not go through hell.

This is definitely okay to reblog and abled people are encouraged to reblog cause maybe it’ll help others understand

Hello it’s me Lexa and this post is relevant again as I just had the Legit Same Talk with someone and I exhausted my number of fucks to give

Oh my god I literally had this conversation with my mother an hour ago.

Mum: “So yeah, I was thinking that when I come down we could do visit an art gallery or a museum or something.”

Me: “I’ll have to see if I’m up for it, I’ve been going through a rough patch. I might not have the energy.”

Mum: “But you love art galleries.”

Me: “I know. What part of ‘it hurts to walk long distances now’ is hard for you though?”

I routinely have people well aware of my disabilities/chronic illness congratulate me on how I “seem to be doing so much better these days!” on a good pain/energy day and then basically try to stage an intervention a week later on a bad one. “You seem to be on a decline lately, I’m just concerned you’re not taking care of yourself!” And then a week later on a good day again congratulate me on how I really seem to have improved and must be making a real effort to keep on top of my health, with no irony or self-awareness whatsoever. The narrative of “getting better” is so ingrained that healthy abled people will ignore massive amounts of cognitive dissonance to apply it where it makes absolutely no sense.

And this belief in “getting better” is actively harmful because that’s how we get shitty things like people having their benefits “reviewed” and taken away because it’s been ten years and they’re not going to the doctor “enough.” They don’t need to get constant treatment after they know what they have, but that doesn’t mean they’re magically cured or just “not trying”!!! It means they’re ill, they’re always going to be ill, and going to the doctor every week isn’t going to change that (not to mention it’s expensive af)!

I see this in my job much more frequently than I should (we help people fight benefit denials and occasionally get back benefits after these “reviews”). Sometimes it’s justified - the person went back to work - but more often, it’s not, it’s just that some worker somewhere decided that this person or that person should be all better by now, and that’s just not how chronic illness works, so ending this idea that chronically ill people will just get better would help put a stop to shit like that.

They cannot comprehend that we do not control our health. In their world, when people are sick it’s because they caught it from someone else, and if you stay sick it’s your fault for not taking care of yourself. They cannot fathom a  world where you can 

do everything right and still be sick. 

“don’t let your disability define you! Fight! INspirEd! Taking back my life from Cancer!” This narrative is everywhere in Able culture. If you JUST tried harder you’d get better. THAT is what they live and believe.

Therefore to them if we are “still” sick or “Sick Again” it’s because WE did something wrong. They can’t comprehend a world where you can’t Earn health as a reward for performing purity, kale and yoga.

I generally don't have an issue telling people about my disability and what it's like. Either they asked or I need an accomodation and don't mind explaining why.

Here's the thing that abled people need to understand, I respect an answer of "oh that sucks" far more to "we'll have you tried yoga?" You don't have to have answers or solutions, I'm never telling you for that purpose. If you don't know what to say, that's fine. You don't have to fill that void of trying to fix things, I go to my doctor's for that.

That said, if something I struggle with sounds too familiar, and you want to ask more because maybe something you thought was normal maybe isn't? I'm here for you, and happy to go through every symptom and what I did about it to help you out on your new journey.